The annual Scientific and Practical Сonference "Polysystemic Orphan Diseases in Adults as an Interdisciplinary Problem" (ПОМП-2024) was held in Moscow.
Experts on rare diseases from all over the country met at the Сonference. During the two days of the event, nine round tables were held, the participants of which discussed the following topics:
- Paroxysmal nocturnal hemoglobinuria (PNH) as an orphan disease of the blood system;
- PNH as an interdisciplinary problem;
- Diagnosis of iron deficiency- a common problem in rare diseases;
- Gaucher's disease;
- Histiocytosis in adults;
- Congenital hemolytic anemia;
- Acute porphyria: new and old problems.
Presentations were made by representatives of federal and regional medical centers and medical universities.
You can follow the announcements of upcoming conferences on the Conference website at помп.орг and on the website of the NMRC for Hematology https://blood.ru/.
The Conference was organized by the National Medical Research Center for Hematology of the Ministry of Health of the Russian Federation, the National Hematology Society, and the ANPO “Metabolic Center.”